Advancing Research Together: Partnering with GFCNI in Research Projects

At GFCNI, we are dedicated to advancing maternal and newborn health by contributing to impactful research. As the global voice for patients and families, we ensure that research remains centered on their needs and experiences. Our collaborations with researchers and institutions worldwide aim to drive innovation, improve care practices, and influence policy change for sustainable healthcare solutions.

Partnering with GFCNI means gaining access to unparalleled expertise and a strong international network of patients, families, healthcare professionals, and policymakers. We provide unique insights into research design, execution, and dissemination to ensure inclusivity and meaningful results.

Our areas of research support include:

• Agenda Setting and Research Prioritization: Defining research priorities through gap analysis, patient-reported outcomes, and coordinating parent representatives.
• Research Design and Planning: Supporting grant applications, reviewing data collection methods, and advising on recruitment strategies.
• Research Conduct and Operation: Assisting with fieldwork, patient information materials, and informed consent processes.
• Data Analysis and Interpretation: Providing patient- and parent-centered perspectives on data interpretation and messaging.
• Dissemination and Communication: Offering advocacy, campaigning, and outreach through patient and parent communities.

To learn more about family involvement in neonatal research, download our position paper, Involvement of Parent Representatives in Neonatal Research (2017).

We engage in research projects as collaborators, advisors, or representatives to ensure patient and family perspectives are integrated throughout. Our role can include:

• Contributing to study design and methodology.
• Advocating for patient inclusion and community engagement.
• Disseminating findings through advocacy, events, and publications.

We are committed to ethical practices, transparency, and collaboration to maximize the impact of every project we join.

We welcome researchers and institutions to partner with us on projects aligned with our mission. To get started:

• Download and fill out our request form.
• Send the completed form to research(at)gfcni.org at least 8 weeks before submitting your grant application.

Our team will review your request and respond promptly to discuss the next steps.

To ensure successful collaboration, we request the following:

• Timely Requests: Allow sufficient time for decision-making and planning.
• Adequate Resources: Allocate financial support to cover our involvement.
• Early Involvement: Include us in the project’s development and application stages.
• Transparent Communication: Share relevant documents, invite us to meetings, and ensure clear reporting.
• Active Participation: Include us in steering groups and work on patient/parent outreach packages.
• Recognition of Contributions: Involve us in publications and communications, with transparent acknowledgment of GFCNI’s role.

Collaboration thrives on mutual respect and shared goals. We look forward to working with you to advance maternal and newborn health.

Partnering with GFCNI means integrating patient and family voices into your research, creating meaningful change for maternal and newborn health. Let’s work together to ensure your project has a lasting impact.

Get in touch today!