Parent and Patient Organizations

Families of preterm and sick newborns often face complex medical, emotional, practical, and financial challenges. Around the world, parent and patient organizations provide trusted support, raise awareness, advocate for better care, and help ensure that the voices of babies and families are heard.

By connecting organizations across countries and regions, GFCNI strengthens collaboration and supports shared action to improve maternal and newborn health.

Join Our Global Network

Four participants posing together in front of GFCNI and European Standards of Care for Newborn Health banners at an international event. — Four participants of the GFCNI Parent and Patient Organizations Summit 2026. © GFCNI

We welcome established charitable parent and patient organizations, advocacy groups, and self-help initiatives that support families of preterm or sick newborns.

Organizations interested in joining should have a clear mission, an active connection to families in their region, and a commitment to improving care, support, and long-term outcomes for newborns and their families.

Organizations in our network benefit from:

Regular exchange with parent and patient organizations around the world
Digital network meetings and updates on GFCNI’s activities
Workshops and training opportunities designed to strengthen organizational impact
Access to shared knowledge, experience, and practical resources
Free campaign and information materials, where available in the relevant language
Opportunities to support global awareness and advocacy campaigns
Potential involvement in research projects as parent or patient representatives
Greater visibility within an international maternal and newborn health community

Our Global Network of Parent and Patient Organizations

Four participants smiling and talking together during an international GFCNI networking event. — Four participants of the 2026 GFCNI Parent and Patient Organizations Summit sharing a friendly conversation. © GFCNI

Parent and patient organizations are powerful drivers of change. They provide peer support, bring lived experience into healthcare and research, and advocate for policies and services that respond to the needs of babies and families.

Through our global network, GFCNI connects organizations across countries and regions, encourages the exchange of knowledge and good practices, and helps amplify the collective voice of families in maternal and newborn health.

Below, you can explore the parent and patient organizations that are already part of our international community.

Interested in joining the network? Contact us at network(at)gfcni.org.